Bruce Willis has been fighting his ongoing battle with frontotemporal dementia (FTD) since he publicly shared his diagnosis in 2023.

Hollywood took it harshly known the beloved “Die Hard” actor would no longer star in his action-packed movies.

Since then, Willis’ family members, including former wife Demi Moore, with whom he shares two children, and current wife Emma Heming, have shared how the legendary actor’s illness has progressed.

However, only one woman made a decision that dramatically impacted the entire family.

Bruce Willis’ reported brain donation plan has fans split, as his wife Emma takes a visible role navigating his dementia battle and turning it into advocacy. (Photo: VCG/VCG via Getty Images)

During a recent appearance on “The Bossticks” podcast, Heming admitted that his heart-breaking health struggles leave her “consistently in grief.” 

“I think what you experience with any form of dementia is it just takes,” she said. “You know these diseases they take and they take, sometimes very slowly, and you are grieving different losses all the time.”

“So you are constantly in grief. I’ve just learned how to navigate it,” Heming added.

She also explained that common misconceptions thought many have about FTD.

“The one that Bruce has affects language,” the mother of two said. “But there’s another variant that will affect behavior and another one that could affect movement.”

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“That’s a different part of the brain. So when people say, ‘Oh, does he remember who you are?’ Well, he does because he doesn’t have Alzheimer’s, he has FTD,’ Heming clarified. 

“I think that’s a very common misconception that, when you think of dementia, we think of memory loss,” she continued.

Commenters on the video expressed their heartfelt words for Heming and Willis.

“I was the wife and caregiver of my husband who suffered with Parkinson’s and Frontal Temporal Dementia,” one YouTube comment read. “The best description I found to describe the years I watched him as he slipped away. I called it…‘The slow goodbye.’”

“This is the way it is. Everyone who has a situation like this experiences this alone feeling. Family has to step up and take care of business. People have to rearrange their lives to accommodate the loved one,” another shared.

A third commenter offered kind words for Heming.

”I think Emma is so ahead of the curve here. Very grateful she is sharing and educating the public on this quiet hidden and tragic disease,” they wrote.

A Daily Mail reader, blasted Hemming who has claimed to be his sole care giver despite hiring help and moving the actor out of the family home with their kids.

“In constant grief? Is that why she shipped him off to a separate house??? I’m certain his money afforded them a massive mansion that could have easily housed a live-in care person or people for him to stay in the house HE paid for!! This [woman] isn’t sad about this…..fake!!!” they wrote.

Willis’ oldest child, daughter Rumer, shared her own experience in May with her superstar dad since his diagnosis.

“Even though our time together is different now, I’m so grateful still that I have this time,” she said while a guest on “The Inside Edit” podcast.

She described their time together as “sweetness,” saying she now gets to see a softer side of her father that fans rarely saw on screen.

“He’s always been this kind of macho dude, but there’s a tenderness there,” Rumer added. “Maybe being Bruce Willis didn’t always allow him to show that side of himself.”

“I’m so grateful for how our family has rallied together in this way,” the actress said. 

“We don’t do it perfectly, but we’re always striving to continue to create connection, and find ways to be with each other and support each other through something that is kind of unprecedented,” she continued during the interview.

Bruce Willis is the proud dad of five daughters: Rumer, Scout, Tallulah with Demi and Mabel and Evelyn with Heming.

Bruce and Hemming celebrated their 17th wedding anniversary in March.

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